Edelife

Contact

If you are interested in Edelife, please contact a doctor responsible for the study from the centers below or the Coordinating Investigator, Prof Schneider. They can share more information with you.

illustration of a child’s hand touching a mother’s hand

Study doctors

Coordinating Investigator

Prof. Dr. med. Holm Schneider

holm.schneider@uk-erlangen.de

+49 91 3185 33775

United Kingdom

Cardiff

Prof. Dr. med Angus Clarke

Institute of Medical Genetics,
University Hospital of Wales,
Heath Park,
Cardiff CF14 4XN
Wales, UK

clarkeaj@cardiff.ac.uk

+44 2920 742577

(email preferred)

France

Paris

Prof. Dr. med Christine Bodemer

Hôpital Necker Enfants Malades
149 rue des sèvres
75015 Paris

christine.bodemer@aphp.fr

+33 1 44 49 43 37

France

Paris

Dr. Smail Hadj-Rabia

Hôpital Necker Enfants Malades
149 rue des sèvres
75015 Paris

smail.hadj@inserm.fr

+ 33 1 44 49 46 68

Germany

Erlangen

Professor Holm Schneider

Universitätsklinikum Erlangen
Zentrum für Ektodermale Dysplasien Erlangen
Loschgestraße 15
91054 Erlangen

www.zeder.uk-erlangen.de

holm.schneider@uk-erlangen.de

+49 9131 8533775

Germany

Leipzig

Prof. Dr. med Holger Stepan

Universitaetsklinikum Leipzig
Departement für Frauen und Kindermedizin
Liebigstrasse 20a
04103 Leipzig

holger.stepan@medizin.uni-leipzig.de

+49 3419723595

Italy

Milano

Prof. Dr. Riccardo Cavalli

IRCCS Ca' Granda Ospedale Policlinico
Dermatologia Pediatrica
Via Pace 9
20122 Milano

riccardo.cavalli@policlinico.mi.it

+39 0255035355

Italy

Milano

Michela Brena, MD

Pediatric Dermatology Unit,
Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico
Dept. of Clinical Sciences and Community Health
Via Pace 9,
20122 Milano

michela.brena@policlinico.mi.it

+39 0255035355